Brain tumor and seizures / nutrition

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3 Posts
Jul 18, 2017 1:09am
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I was diagnosed with a benign brain tumor in 2015. I have occipital and absence seizures controlled mostly by meds now. I am on 300mg of topomax per day (that's a lot). I started a ketogenic diet in order to control the seizures. I know keto is a big weight loss fad right now, but it was originally developed to help control seizures in children with epilepsy. Does anyone on here know the difference (if there is any) between the diet if you are doing it to control seizures or doing it to lose weight. I personally could care less about weight at this point in my journey and just want these seizures to stop. I do work with a team of drs, but they only want to talk about medicine. I started seeing a nutritionist, but I wanted to reach out here to see what information I can get before going in so I at least have some knowledge. I have been lost in all of it and have only talked to people who have done keto to lose weight or train, no one who had done it for seizures. So... anyone???
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220 Posts
Jul 20, 2017 11:12pm

I'm sorry for you Lisa and hope, you feel good and that you are healed!

You don't have to lose weight in a ketonic dieat. If you eat enough, especially fat, your weight doesn't change. I have read, that seizures are reduced if you don't eat refined wheat.

Do you speak german?

21 Jul
Maybe this could be interesting for you: https://www.ncbi.nlm.nih.gov/pubmed/21112742
21 Jul
I don't speak German. Thank you for your kind words. Keto is supposed to help with seizures. My journey has begun!
21 Jul
Crossing my fingers:) by all, don't forget to have refeed days with carbs - kd is causing insulin troubles if its done for a long time
21 Jul
I do carb ups and am going to a dietician. She is watching me very closely. Thank you!
21 Jul
you're welcome! You're on a good way, you have to be successful just pm me, if you have any further questions
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